I’m glad you’re here. I started this blog as a way to reach out to heart parents and offer support and connection. Being thrown into this new identity is a rough transition, filled with grief and hopelessness. When we received my son’s diagnoses in 2012, there was nothing on the internet that gave us hope. It was page after page of bad outcomes, memorial pages and worst case scenarios. It sent me on a spiral of depression that I would never wish on another soul.
My dream is to provide hope for families who have learned of the bumpy journey they’re about to embark on, and to be able to guide them in areas where we had to walk through blindly.
Although I embrace the title of “Heart Mom”, it’s not the only hat I wear. I have my bachelor’s in elementary education, and a master’s in special education. Working in the field of special education has allowed me to understand the journey of parents advocating for their children with special needs, even before I was thrown into a corner of this world personally.
I am currently a stay at home parent and have found that in between the steep roller coaster drops of open heart surgeries and prolonged hospital stays, life is pleasantly boring. I like to create in my spare time. Whether it be cooking, writing, perfecting my icing technique for Christmas cookies, plotting out my next photo book or just coloring with my 7 and 2-year-old. I used to fantasize about the life of a recording artist, but now my stage fright keeps me from most public vocal performances. You’ll catch me singing at church about once per year.
Even with these outlets, our little life in the Pacific Northwest is far from perfect. I struggle with anxiety and depression, and this often shows in my housekeeping techniques. I’m a firm believer in the power of a good therapist. I seek God daily, but to be honest, I have a hard time experiencing Him on a level that I often see others enjoying. When I was 19, my brother died from complications connected to a spinal injury that left him paralyzed from the waist down. That trauma was the beginning of a saltier view of life that I often have a hard time working through, but have learned to use it to my advantage. Thus my belief in therapy and my daily God seeking. Gulp.
As well as providing hope and resources for families touched by congenital heart disease, I’d love to share a little corner of my daily life with you, through parenting mishaps, recipe testing, and creativity with my kids. Let this blog be the proof that life can eventually move forward after a heavy medical diagnosis. That in the middle of it all, there are still cookies to bake and projects to create. Your world may be shaken, but it doesn’t have to fall down around you.
Thanks for visiting, I hope you come back often.