The one thing that I was never told after my son’s initial diagnosis of congenital heart disease (CHD), is that I was about to face something more painful and scary than I had ever experienced before. No one sat me … Read More
Russell loves having a story in the background. It seems to make quiet activities last a little longer with the added interest of a story line woven in behind him. Reading aloud to him every time would be optimal, but … Read More
Every time Russ ends up in the hospital, one of my concerns is “How the heck are we going to entertain this kid for X amount of days in bed?” Besides the old standbys of books, paper and markers, and … Read More
I’m currently sitting on my couch stress eating Fritos dipped in sour cream. We have no decent candy, so I’m considering digging into the Harry and David cherry preserves we were gifted for Christmas with a spoon. Why, you ask? … Read More
If you haven’t noticed, babies move a lot, and kids don’t really enjoy 1. Sitting still for long periods of time, and 2. Being poked with needles. As your heart kid gets older, medical procedures are going to get harder. … Read More
Packing for the hospital can be a daunting task. You may be going into a situation that you’ve never encountered before. The hospital feels big and scary, and full of rules. Who knows what they do and don’t allow? I … Read More
If you’ve received the news that your baby will need to undergo a surgical procedure soon after birth, you may be feeling completely lost about what to pack for such a stay. When I was pregnant with my son in … Read More